|Chinese||Part of Speech||Pinyin||English|
|骨折||(v)||gǔzhé||(of one’s bones) to fracture|
|基因突变||(n)||jīyīn tūbiàn||gene mutation|
Text (1): Caring for “porcelain doll”
“Can you imagine a human bone as thin as a needle?” The young man who asked this question was Huang Rufang. The young man, who was less than one meter tall, was a patient with a rare disease called “osteogenesis imperfecta”. The girl next to him with long curly hair and a gentle voice. Her name is Wang Yiou. Her height is only 1.2 meters, and she is also suffering from osteogenesis imperfecta. In other words, she is the so-called “porcelain doll”.
Osteogenesis imperfecta, also known as brittle bone disease, has an incidence rate of 1/10000–1/15000. Because of congenital collagen fiber lesions, patients suffer from thin and brittle bone, low bone density, poor bone strength tolerance and are easy to have a bone fracture, just like fragile porcelain. Frequent bone fractures often lead to bone deformity, short stature, and even movement disorder in severe cases.
Wang Yiou and Huang Rufang have healthy parents and family members, but because of the unexplained gene mutation, they have become “porcelain dolls”.
From the age of 1 to 16 years old, Wang Yiou fractured her bones 6 times. The bone deformity caused by the fracture made her lose the ability to walk normally. When she was 19, an operation with a success rate of only 50% gave her the chance to walk again. Later, through self-study, Wang Yiou got two professional diplomas in accounting and law and found a stable job in Beijing after graduating from college.
They are porcelain dolls, but they are not fragile. Although they are seriously ill, they still can have a bright future. They need financial help, but they need the understanding and respect of society even more. Please work together to care for porcelain dolls!